Update Oct 1 2019
Update March 25 2018
My GFR is 7 now and I am on Dialysis full time. I choose to do PD or Peritoneal Dialysis which is done using a machine at home while you sleep. Pretty easy for the most part. I am healthy, strong, working, exercise everyday and trying to live a full life.
My Kidney Disease Story
My name is John Glenn Miller. I am a 51 year old single father of two wonderful boys living in Pitt Meadows BC. I am in pretty good health except I have PKD, Polycystic Kidney Disease which is genetic. I am in need of a new Kidney. My blood type is O+ and I am compatible with O+ or O-.
My beautiful and amazing girlfriend volunteered to donate one of her kidneys to me. Many tests were required and it was found that Cindy was a perfect match for me. Then they saw something on her liver, it was cancer. They removed parts of her liver, her gall bladder and a portion of her small intestine. Cindy is recovering very well but it will be a constant life battle from now on. Appreciate your health, you never know.
Polycystic means “many fluid-filled sacs”
or “many cysts”. Polycystic kidney disease (PKD) is a genetic disorder that causes multiple cysts to form in the kidneys. Polycystic kidneys become very large, have a bumpy surface and contain many fluid-filled cysts.
I have a GFR of 12 which means 12% remaining function of my two kidneys which is stage five renal failure. There is no stage six. At this point I must find a live donor or prepare to go on Dialysis. Once on Dialysis you go onto the Kidney waiting list which is 4-7 years depending on your blood type.
Dialysis is a machine that filters your blood for you, 3-4 times a week, 4-6 hours a day. Or in some cases, hooked up to a machine every night while sleeping. Many, many people are on dialysis everyday and many die waiting for a Kidney. They say the outcome is better for patients who receive a transplant before starting Dialysis. It is a chance for a relatively normal life.
Becoming a Live Donor – SHARE YOUR SPARE
Everyone has two kidneys, a healthy person can function with one healthy kidney just as normal as two. Being a live donor is a big commitment, you will be poked, prodded, and tested.
If you wish to think about becoming a live donor for me, please contact Vancouver General Hospital and tell them you want to be tested for me, John Glenn Miller.
Please know before you call VGH, you need to be able to afford time off work, you need to be very healthy, no high blood pressure or any other problems. You need to be compatible with O+ or O- blood type. Thanks!
Vancouver General Hospital Living Donor Program
Gordon and Leslie Diamond Health Care Centre
Level 5, 2775 Laurel Street
Vancouver, BC V5Z 1M9
Phone: 604-875-5182 Toll Free: 1-855-875-5182
If you have any questions please email me at anytime. firstname.lastname@example.org
Below are links that provide information on the Kidney Transplant Process and Becoming a Live Donor.
Video Explaining the Transplant Process
To watch an Introduction to Kidney Transplant: A Step by Step Process, click here.
Living Donor Kidney Program
Larry David Donates a Kidney!
Because I Can Project
And This is Crazy Video