My Kidney Disease Story
My name is Glenn. John Glenn Miller. I am a 51 year old single father of two wonderful boys living in Pitt Meadows BC. I am in pretty good health except I have PKD, Polycystic Kidney Disease which is genetic. I am in need of a new Kidney. My blood type is O+ and I am compatible with O+ or O-.
My beautiful and amazing girlfriend volunteered to donate one of her kidneys to me. Many tests were required and it was found that Cindy was a perfect match for me. Then they saw something on her liver, it was cancer. They removed parts of her liver, her gall bladder and a portion of her small intestine. Cindy is recovering very well but it will be a constant life battle from now on. Appreciate your health, you never know.
Polycystic means “many fluid-filled sacs”
or “many cysts”. Polycystic kidney disease (PKD) is a genetic disorder that causes multiple cysts to form in the kidneys. Polycystic kidneys become very large, have a bumpy surface and contain many fluid-filled cysts.
I have a GFR of 13 which means 13% remaining function of my two kidneys which is stage five renal failure. There is no stage six. At this point I must find a live donor or prepare to go on Dialysis. Once on Dialysis you go onto the Kidney waiting list which is 4-7 years depending on your blood type.
Dialysis is a machine that filters your blood for you, 3-4 times a week, 4-6 hours a day. Or in some cases, hooked up to a machine every night while sleeping. Many, many people are on dialysis everyday and many die waiting for a Kidney. They say the outcome is better for patients who receive a transplant before starting Dialysis. It is a chance for a relatively normal life.
Becoming a Live Donor – SHARE YOUR SPARE
Everyone has two kidneys, a healthy person can function with one healthy kidney just as normal as two. Being a live donor is a big commitment, you will be poked, prodded, and tested.
If you wish to think about becoming a live donor for me, please contact Vancouver General Hospital and tell them you want to be tested for me, John Glenn Miller.
Vancouver General Hospital Living Donor Program 5th Floor
Gordon and Leslie Diamond Health Care Centre
2775 Laurel Street Vancouver, BC V5Z 1M9
Phone: 604-875-5182 Fax: 604-875-5236 Toll Free: 1-855-875-5182
If you have any questions please email me at anytime. firstname.lastname@example.org
Below are links that provide information on the Kidney Transplant Process and Becoming a Live Donor.
Video Explaining the Transplant Process
To watch an Introduction to Kidney Transplant: A Step by Step Process, click here.
Living Donor Kidney Program Brochure
The Living Donor Kidney Transplant Process (PDF)
Larry David Donates a Kidney!
Because I Can Project
And This is Crazy Video